We the Patients

Patient Stories

Diabetes price increase graphic

When Susan Unger’s Insurance Plan Suddenly Stopped Covering Her Diabetes Medication, She Fought Back

What would you do if one day, the insurance that you paid into for over two decades, stopped paying for your life-saving drugs? Susan Unger is a 64-year-old New Yorker. Her life’s story can be traced across the city. She grew up in Long Island and began her career in the performing arts in Manhattan. …

When Susan Unger’s Insurance Plan Suddenly Stopped Covering Her Diabetes Medication, She Fought Back Read More »

Patient advocate Ilene Corina's personal story

Interview: Ilene Corina of the Pulse Center for Patient Safety Education & Advocacy

If getting access to fair and safe healthcare is a fight, Ilene Corina is the kind of person you want in your corner. Corina is a Patient Safety Educator and Advocate, she is the President of the Pulse Center for Patient Safety, Education & Advocacy. Nearly 20 years old, Pulse CPSEA is the Long Island-born, …

Interview: Ilene Corina of the Pulse Center for Patient Safety Education & Advocacy Read More »

Sintora Simpson quote Facility Fee

Nickel and Dimed to Death Over a $142 Facility Fee – Sintora Simpson, NYC

Sintora went in for a breast exam at Chelsea Medical Center at Mount Sinai. She signed all routine medical documents, paid her copay, saw her doctor, and had her exam. Or so she thought. Next came a $142 facility fee. Sintora told the doctor’s office she would NOT pay the bill. She pointed out, “if …

Nickel and Dimed to Death Over a $142 Facility Fee – Sintora Simpson, NYC Read More »

Woman with picture of her mother

A series of medical errors turned a grieving daughter into a patient advocate – Mary Brennan-Taylor

Healthy and full of life at 88-years old, Alice Brennan was looking forward to her 70th high school reunion. An exciting and monumental achievement for anyone to make it to. She even jumped in to help plan the event. It was a shock, when a sudden health problem sent her to the hospital, where she …

A series of medical errors turned a grieving daughter into a patient advocate – Mary Brennan-Taylor Read More »

Claudia Knafo giving interview in front piano

Claudia Knafo of famed $101,000 Spinal Surgery Continues to Fight Surprise Medical Bills

Claudia Knafo of famed, $101,000 spinal surgery bill, talks with us, sharing her experiences with outrageous medical billing and her ongoing fight for health care reform. Claudia’s passion for patient advocacy was born out of an unfair, surprise medical bill. She was told she needed immediate spinal surgery. That if forgone, would threaten her ability …

Claudia Knafo of famed $101,000 Spinal Surgery Continues to Fight Surprise Medical Bills Read More »

New Parents Owe $400,000 Due to Misinformation Provided During Enrollment – June Caspi, NYC

I don’t know about you but becoming a parent is pretty exciting. You can’t wait to meet this new person who is about to become a part of your life forever. As a new chapter of your life begins, it also comes with concerns you didn’t previously have. “Do I have everything I need?” “To …

New Parents Owe $400,000 Due to Misinformation Provided During Enrollment – June Caspi, NYC Read More »

Man smiling

Guest Post: A Diagnosis of Kidney Stones Leaves Patient With 27 Different Bills – Chandak Ghosh, NYC

I met Chandak Ghosh at a New York Immigration Coalition meeting. After pitching We The Patients’ core mission of amplifying patient voices who have been wronged by unfair medical billing practices, Chandak piped up with his own story. In his words, Chandak recounts his experience at Mt. Sinai West in 2010: A simple case of …

Guest Post: A Diagnosis of Kidney Stones Leaves Patient With 27 Different Bills – Chandak Ghosh, NYC Read More »

Rising Cost Of Health Insurance Leaves Veteran Searching For Options – Frank Kusk, Queens County

After faithfully serving his country in the Vietnam War, Frank Kusk, a 75-year-old New Yorker felt it was his duty to pay for his health insurance out-of-pocket. Frank, now retired, paid for all of his expenses (including his health insurance) from his hard-earned personal savings. Over time, the rising price of his health insurance cost …

Rising Cost Of Health Insurance Leaves Veteran Searching For Options – Frank Kusk, Queens County Read More »

medical bill breakdown

Guest Post: Patient Perspective – Dave’s Medical Bill Breakdown

Date of event: 8/13/17 Issue: Passed out at cousin’s house on my way home after a long walk, (apparently) due to dehydration. Result: 911 was called, ambulance arrived in short order, excellent EMT diagnostic and stabilization care provided on-site. I was then transported to nearest hospital emergency room, where treatment and diagnostic care were provided. …

Guest Post: Patient Perspective – Dave’s Medical Bill Breakdown Read More »

Man charged with $2k bill after going to the wrong medical facility

Patient Sent to Wrong Facility, Charged 20x More Than Expected – Brian Glancy, Ulster County

Brian Glancy needed medical testing. His doctor sent him to a facility Brian THOUGHT was just another in-network doctor’s office. He trusted his doctor knew best. He couldn’t help but feel the wool had been pulled over his eyes when he was hit with a surprise $2,000 medical bill. As Brian puts it, “The charges …

Patient Sent to Wrong Facility, Charged 20x More Than Expected – Brian Glancy, Ulster County Read More »