A CAMPAIGN POWERED BY PATIENTS.
Shockingly high medical bill? Unaffordable insurance coverage? Share your health care story and join the movement of patients advocating for more affordable, accessible and equitable health care in New York.
Patient advocates drive policy change.
In 2004, 24-year-old Manny Lanza needed urgent surgery for a life-threatening brain condition. But without insurance, the hospital refused to schedule the treatment. Manny died waiting.
Manny’s father fought to make Manny’s story known. He, alongside longtime health and legal advocates, became the catalyst for New York’s charity care law passed in 2007, which requires hospitals to provide free or low cost care to uninsured or underinsured patients. The law – the Hospital Financial Assistance Law – is now known as Manny’s Law.
Patient voices can be powerful forces for health care reform. We The Patients is a movement to amplify those experiences and engage patients in health care advocacy, to create a better health care system. We believe collective action—working together with community members, activists, unions, nonprofits, policymakers, volunteers, and more—is the best way to accelerate and actualize change.
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Get updates on our latest advocacy efforts and learn how you can get involved.
WHAT ARE WE ADVOCATING FOR?
Over 52,000 New Yorkers were sued by New York’s charitable hospitals between 2015 and 2020, including at least 4,000 people sued during the pandemic. Patients need protections from unfair medical bills and extraordinary collections actions taken over medical debt.
- Ending liens and wage garnishment over unpaid medical bills
- Making financial assistance applications consistent and accessible for patients
- Eliminating facility fees for preventive care
Half of New Yorkers say that they cannot afford medical care even with insurance and another 5 percent of New Yorkers – 1 million people – have no coverage at all. Health coverage should be accessible and affordable, for all New Yorkers.
New York can improve coverage by:
- Passing the New York Health Act, which would ensure coverage for everyone in the state
- Allowing all income-eligible New Yorkers to enroll in the state’s Essential Plan, regardless of immigration status
- Expanding Medicaid coverage to one year postpartum for new mothers, making Medicaid accessible for older people or those with disabilities, and expanding eligibility for Medicare Savings Programs (MSPs)
- Eliminating premiums for children enrolled in Child Health Plus
Decisions surrounding hospital building projects and closures are made without considering community need, often resulting in limited access to care for communities with lower incomes or with more people of color. For example, Queens has just 1.5 hospital beds for every 1,000 residents, while Manhattan has 6.4.
We can create a more equitable New York by:
- Adding patients to the Public Health and Health Planning Council to ensure hospital planning decisions reflect patient needs
- Distribute more of New York’s $1.1 billion indigent care pool to hospitals that care for the lowest-income New Yorkers
Consumer assistance programs are crucial to helping patients enroll in coverage and navigate our complex health care system
- Increase funding for Navigators who provide enrollment assistance
- Create a grant program to fund community-based organizations to conduct outreach in communities with large uninsured populations
- Increase funding for Community Health Advocates to handle rising demand