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ABOUT
US

We The Patients is a project to empower patients to advocate for OUR health care. A space to amplify you – the consumer’s voice – to share your stories that relate to lack of access, high cost, and quality of your health care. This is a digital platform for you to share your experiences, concerns, and thoughts on how together, we can improve the health system in New York.

Want to be even more engaged? Become a patient advocate. Work with us to create real policy change in New York. From signing a petition to calling a decision maker, we will provide you in-person advocacy trainings, and take you on trips to Albany to talk with state policy makers to advocate for change. Whatever level of engagement you feel comfortable with, we will act as a catalyst for your empowerment.

People

We The Patients is led by YOU. Members of the Community Service Society of New York are helping lead the initiative.

Emily Dore – Digital Organizer
Jim Guest – Organizing & Training Advisor
Chuck Bell–  Advisor
Claudia Knafo –  Advisor
Amy Shefrin – Advisor
Kistein Monkhouse – Storytelling Advisor
Anna Allen –  Health Literacy Advisor
Elisabeth Ryden Benjamin – Co-Chair
David R. Jones – Co-Chair

We The Patients is graciously funded by the New York State Health Foundation.

To learn more about the inspiration of this project (and a great read!) please check out Elisabeth Rosenthal’s An American Sickness.

Press

Grassroots group to fight medical debt collection, surprise billsCrain’s New York Business 
Some local patients pay 10 times more than others for a common blood testCrain’s New York Business
Abierto un espacio en la red para quejas sobre el sistema de saludEl Diario 
We Have to Solve This ProblemManhattan Times 
Patients urged to share billing frustrations, organize to shape health policyBeckers Hospital Review
URBAN AGENDA: Giving Patients A Voice in the Health Care Policy DebateNew York Amsterdam News
What the proposed patient advocate office means for city hospitals– Crain’s New York Business

How to get involved

We The Patients is powered by patient voices. Similar to other empowerment projects like Bill of the Month and Paying Till It Hurts, we are here to give you a platform to share your stories with other patients. Please get involved with our current campaigns.

Tell us your experience, tell us your concerns, tell us what we can do to help you. Start the conversation!

Email us at: wethepatients@cssny.org.

Facebook: /wethepatients

Twitter: @wethepatientsny or #wearelosingourpatience

Instagram: wethepatientsny