We The Patients is a project to empower patients to advocate for OUR health care. A space to amplify you – the consumer’s voice – to share your stories that relate to lack of access, high cost, and quality of your health care. This is a digital platform for you to share your experiences, concerns, and thoughts on how together, we can improve the health system in New York.
Want to be even more engaged? Become a patient advocate. Work with us to create real policy change in New York. From signing a petition to calling a decision maker, we will provide you in-person advocacy trainings, and take you on trips to Albany to talk with state policy makers to advocate for change. Whatever level of engagement you feel comfortable with, we will act as a catalyst for your empowerment.
We The Patients is led by YOU. Members of the Community Service Society of New York are helping lead the initiative.
Emily Dore – Digital Organizer
Jim Guest – Advisor
Chuck Bell– Advisor
Claudia Knafo – Advisor
Amy Shefrin – Advisor
Kistein Monkhouse – Storytelling Advisor
Anna Allen – Health Literacy Advisor
Elisabeth Ryden Benjamin – Co-Chair
David R. Jones – Co-Chair
Emily Bell – Freelance Volunteer Writer
We The Patients is generally funded, in part by the New York State Health Foundation.
To learn more about the inspiration of this project (and a great read!) please check out Elisabeth Rosenthal’s An American Sickness.
Her Genetic Test Revealed A Microscopic Problem – And A Jumbo Price Tag – Kaiser Health News
Disrupting the Medical Debt Collection Highway – Altarum Healthcare Value Hub
New York nonprofit hospitals have sued nearly 31,000 patients for unpaid bills – Becker’s Hospital Review
The Art of Health Care Haggling – Full Frontal on TBS
New Bill Would Prevent NY Patients From Getting Stuck With Hidden ‘Facility Fees’ – Gothamist
Patient Who Questioned ‘Blank Check’ Financial Liability Form Turned Away Right Before Medical Procedure – Gothamist
#PriceCheckNYC: Avoiding Care Because of the Money – WNYC
Welcome to the Club (That You Don’t Want to Join) – Start Here (ABC News)
Why New York Is At The Center Of The Debate Over How To Fight Surprise Medical Bills – Gothamist
Why So Many Hospitals Are Suing Their Patients – The Daily (The New York Times)
With Medical Bills Skyrocketing, More Hospitals Are Suing for Payment – The New York Times
What Happens If You Don’t Pay a Hospital Bill? – The Atlantic
Disgusting: Study Shows Hospitals Sending More and More Surprise Bills – The Daily Beast
What the proposed patient advocate office means for city hospitals – Crain’s New York Business
URBAN AGENDA: Giving Patients A Voice in the Health Care Policy Debate – New York Amsterdam News
Patients urged to share billing frustrations, organize to shape health policy – Beckers Hospital Review
We Have to Solve This Problem – Manhattan Times
Abierto un espacio en la red para quejas sobre el sistema de salud – El Diario
Some local patients pay 10 times more than others for a common blood test – Crain’s New York Business
Grassroots group to fight medical debt collection, surprise bills – Crain’s New York Business
How to get involved
We The Patients is powered by patient voices. Similar to other empowerment projects like Bill of the Month and Paying Till It Hurts, we are here to give you a platform to share your stories with other patients. Please get involved with our current campaigns.
Tell us your experience, tell us your concerns, tell us what we can do to help you. Start the conversation!
Email us at: email@example.com.
Twitter: @wethepatientsny or #wearelosingourpatience