We the Patients

ABOUT WE THE PATIENTS

WE THE PATIENTS IS A MOVEMENT FOR
PATIENT-LED HEALTHCARE REFORM

We The Patients is a megaphone for patient voices, amplifying their experiences related to health care access,

cost and quality for policymakers and the public. Supported by community advocates and informed

by the latest research, together we can improve health care in New York.

POLICY WORK

We The Patients is powered by The Community Service Society of New York (CSS). Through research, direct services, and advocacy, CSS ensures New Yorkers have the power to create change in their own lives—and the life of our city and state.


CSS’ health care access programs have helped more than a million New Yorkers (and counting) enroll in health insurance and navigate the complexities of the health care landscape, improving health and economic security statewide.


CSS’ research – including the Discharged Into Debt series – centers the experiences of low-income communities and communities of color. Insights from that research directly inform the organization’s policy agenda, services and campaigns.


Learn more about CSS

 

CHANGE POWERED BY PATIENTS

In 2004, 24-year-old Manny Lanza needed urgent surgery for a life-threatening brain condition. But without insurance, the hospital refused to schedule the treatment. Manny died waiting.

Manny’s father fought to make Manny’s story known. He, alongside longtime health and legal advocates, became the catalyst for New York’s charity care law passed in 2007, which requires hospitals to provide free or low cost care to uninsured or underinsured patients.

The law – the Hospital Financial Assistance Law – is now known as Manny’s Law. 

  Hear Manny’s story on “Arm and a Leg”

Become a patient advocate.

From speaking with a journalist to connecting with policymakers in Albany, we will create opportunities to advocate for real policy change in New York. Whatever level of engagement you feel comfortable with, we’re here to support your efforts.

To learn more about the inspiration behind this project – and a great read! – check out Elisabeth Rosenthal’s
An American Sickness

We the Patients is led by you, the patient, with support from members of the Community Service Society of New York.

We the Patients is funded by the New York Health Foundation.

 

People

Allie Krugman

Health Policy Digital Organizer

Kistein Monkhouse

Storytelling Advisor

Caitlin Donovan

Advisor

Chuck Bell

Advisor

Anna Allen

Literacy Advisor

Elizabeth Ryden Benjamin

Co-Chair

Claudia Knafo

Advisor

Amy Shefrin

Advisor

Karylnn Holland

 Advisor

David R. Jones

Co-Chair